I have been diagnosed with Hypermobile Ehlers-Danlos Syndrome.
There wasn’t a great deal of doubt going into the consultation today. It didn’t take long looking at my joints and discussing my difficulties for the specialist to confirm my GP’s first assessment. He seemed hopeful we might be able to manage the pain, so that’s something. I’ll have a lot of follow ups ahead. At least we ruled out the other 12 types.
This is the cause of my fatigue. This is why I fall over so much. This is why a lot of things. It is what it is, but I have to be realistic, because this is going to get worse. I’m going to eventually have too much pain to walk in all likelihood. So I have to be pragmatic now to hold that off as long as possible. There might be no cure, but I can manage this. It’s just another thing to track. In fact not even, it’s more like a bunch of unknowns just became known, and now I reassess how I deal with them. We’ll see. I’ll be ok.
Also I finished writing NHO. Going right onto TEL.