June 21st, 2022 – 1,364

~ Sam Shuttleworth

I have been diagnosed with Hypermobile Ehlers-Danlos Syndrome.

There wasn’t a great deal of doubt going into the consultation today. It didn’t take long looking at my joints and discussing my difficulties for the specialist to confirm my GP’s first assessment. He seemed hopeful we might be able to manage the pain, so that’s something. I’ll have a lot of follow ups ahead. At least we ruled out the other 12 types.

This is the cause of my fatigue. This is why I fall over so much. This is why a lot of things. It is what it is, but I have to be realistic, because this is going to get worse. I’m going to eventually have too much pain to walk in all likelihood. So I have to be pragmatic now to hold that off as long as possible. There might be no cure, but I can manage this. It’s just another thing to track. In fact not even, it’s more like a bunch of unknowns just became known, and now I reassess how I deal with them. We’ll see. I’ll be ok.

Also I finished writing NHO. Going right onto TEL.

Published by Sam Shuttleworth

I’m Sam, and I live to write. I spent most of the first 8 years of my adulthood trying to balance writing with a large amount of crap in my personal life, until towards the end of 2018 I threw everything out and started afresh with just my writing. I built the new me around one goal: I have to write at least 1,000 words a day. I called this goal 1K, and it changed my life. So long as I write a thousand words a day, the day is a success, and atop that I've managed over time to build the life I wanted all those years. My greatest flaws as a writer is I still use too many adjectives, adverbs, connectives as openers, accidental passive voice and I don't force my work down people's throats enough on pain of extreme and unusual torture. My greatest strength is I know my greatest flaws and I'm working on them.